WelcomeMelanie is 16 and she’s a warrior; our smiling warrior. She has fought RSD/CRPS (Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome) a neurological dysfunction which causes chronic pain and other symptoms along with Gastroparesis (stomach paralysis), syncope, fatigue, Eheler's Danlos, Mitochondrial dysfunction from an RYR2 gene mutation, and Dysautonomia for nearly 6 years. Many doctors have listened and tried to help her symptoms, while others offer nothing and shuffle her along to another specialist. She is deemed to be “complex” and a “puzzle” and we are still trying to find just the right treatment ideology, if not a better diagnosis/explanation for her symptom set. She has been through many treatments, medications, and she continues with daily physical activity that is painful but critical. She also has an implanted device to help her stomach act properly and to help symptoms which don’t respond to medication (nausea, vomiting, reflux). She has learned to adapt, improvise and overcome many challenges and teaches us daily about inner strength and positive thinking. She is my hero. She shows the world her triumphant spirit and bravery every step of the way. Crazy Sock Day is a celebration of HER(rather than the fateful day life was turned upside down in 2010) as well as an AWARENESS event for RSD/CRPS and Gastroparesis. Please join us each year. you wear the colorful crazy socks that Melanie has come to love and be known for and others will ask "why?" This is when you tell them all about Melanie and fighting a monster but living life with a smile through it all.
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